About us

About Maddie Riewoldt’s Vision

Maddie Riewoldt was just 26 years old when she tragically died of a Bone Marrow Failure Syndrome called Aplastic Anaemia. When her fight was ending in February 2015, she asked her family to make her a promise; Maddie wanted nobody else to go through what she did.

Maddie Riewoldt’s Vision is her legacy.

Approximately 160 Australians are diagnosed with Bone Marrow Failure Syndromes each year. Distressingly, most of them are children and young adults, and 50% will not survive. Thousands more are living with ongoing complex health issues.

At Maddie’s Vision, we are determined to find better support options, treatments and a cure for patients living with Bone Marrow Failure Syndromes and their families. Please join us and together, we will #FightLikeMaddie.

Bone Marrow Failure Syndromes

Bone Marrow Failure Syndromes are a collection of medical conditions where the bone marrow stops working or works insufficiently. 

This means that bone marrow stem cells can’t produce enough healthy red blood cells, white blood cells and platelets to meet the body’s daily requirements. When a person’s bone marrow no longer works adequately, they become extremely sick.

Our Research

Maddie Riewoldt’s Vision is committed to funding high-quality research projects with the potential to deliver breakthroughs in the prevention, diagnosis and treatment of Bone Marrow Failure Syndromes.

Our Centre of Research Excellence in Bone Marrow Biology brings together a community of scientists, clinicians, allied health, patient and family representatives, together with government and other health industry experts, and works to amplify and accelerate research leading to improved health outcomes for patients.

Supporting Patients and Families

The Maddie’s Vision Telehealth Nurse Consultation Service is the only available service for Bone Marrow Failure Syndrome patients in Australia. This service ensures that our patient and family's needs and well-being are understood, evaluated, and fulfilled. This holistic approach and expertise in Bone Marrow Failure Syndromes make our service unique.

Patient and Family Stories

Thanks to our incredible patients and families for sharing their stories. This is who we're working for!

When you support Maddie's Vision, you're helping power the incredible research that will unlock better treatments and cures for people living with Bone Marrow Failure Syndromes and ensuring they can access the support they need.

Matty and Cheryl's story

“The research that you guys are doing is wonderful…my hope is that they’ll find a magic cure!”

Meet Matt and his grandmother Cheryll, who he affectionately calls Honey. Cheryll talks about Matty's journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.

Carter and Skye's story

“I was so excited when Maddie Riewoldt’s Vision came about, because here was an amazing opportunity for researchers to get funded to find cures.”

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

DJ's story

“If it wasn’t for the work and research that Maddie’s Vision does and continues to do, my son would not be healthier and thriving again.
There is still so much research to do to help people like my son, so please please keep funding this research. It saved my son's life, and will continue to save others.”

When Emily’s son Daijhinmaru (DJ) experienced complications from his transplant following his diagnosis of Severe Aplastic Anaemia, she felt lost, anxious and like she failed. Emily has kindly shared her story with us.