Personal Stories

The patients and families your ride is supporting

When you support Maddie's Vision, you're helping power the incredible research that will unlock better treatments and cures for people living with Bone Marrow Failure Syndromes and ensuring they can access the support they need.

Carter and Skye's story

"I was so excited when Maddie Riewoldt’s Vision came about, because here was an amazing opportunity for researchers to get funded to find cures.”

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

Matt and Cheryl's Story

“The research that you guys are doing is wonderful…my hope is that they’ll find a magic cure!”

Meet Matt and his grandmother Cheryll, who he affectionately calls Honey. Cheryll talks about Matty's journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.