Personal Stories

The patients and families your ride is supporting

When you support Maddie's Vision, you're helping power the incredible research that will unlock better treatments and cures for people living with Bone Marrow Failure Syndromes and ensuring they can access the support they need.

Jess & Seth's Story

"Maddie's Vision are our guiding light and we are just so lucky and thankful that we have them.”

At just 7 years old, Seth was diagnosed with Aplastic Anaemia — a rare and life-threatening Bone Marrow Failure Syndrome. Hear directly from Seth and his Mum, Jess, as they share their personal journey.

Gerry & Daniel's Story

"We just had a real gap in knowledge, so that was really scary as a family. Being able to talk to the Maddie's Vision Tele-Support Service can be a really good tool in softening the blow of that initial diagnosis."

Daniel was just 9 years old when he was diagnosed with the Bone Marrow Failure Syndrome, Aplastic Anaemia. Hear directly from Daniel and his father, Gerry, about what it's like to face a Bone Marrow Failure Syndrome diagnosis.