Your support will change lives
United Energy Around the Bay is supporting Maddie’s Vision to fund vital research and increased support for patients and families living with Bone Marrow Failure Syndromes.
Every 3 days an Australian is diagnosed with a Bone Marrow Failure Syndrome. Distressingly, most are children and young adults, and 50% will not survive. Thousands more are living with complex medical issues and ongoing risks to their health.
When our bone marrow fails, our body is unable to produce healthy blood cells, causing fundamental disruptions to our health. Sadly, treatments are inadequate and the only potential cure is a bone marrow transplantation which has serious risks.
Patients diagnosed with Bone Marrow Failure Syndromes and their families find there are limited treatment and support options available. That’s why Maddie Riewoldt’s Vision is here.
By fundraising for Maddie’s Vision, you’re helping fund research that will result in faster diagnosis, better treatments, tailored support and improved outcomes for patients and families impacted by Bone Marrow Failure Syndromes.
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About Maddie’s Vision
Maddie Riewoldt was just 26 years old when she tragically died of a Bone Marrow Failure Syndrome called Aplastic Anaemia. When her fight was ending in February 2015, she asked her family to make her a promise; Maddie wanted nobody else to go through what she did.
Maddie Riewoldt’s Vision is her legacy.
At Maddie’s Vision, we are determined to increase support, find better treatments and ultimately a cure for patients living with Bone Marrow Failure Syndromes. Please join us and together, we will #FightLikeMaddie.
Enter the Maddie's Vision Raffle
Maddie's Vision will be at the Event Village on Sunday, and we're thrilled to announce we will be running a raffle to raise much needed funds.
By entering the Maddie's Vision raffle, not only will you have the opportunity to win some exclusive prizes, but you'll be helping us fund vital research and support options for patients and families living with Bone Marrow Failure Syndromes.
You can buy tickets to the raffle online below, or at the Maddie's Vision marquee.
Meet the Maddie's Vision 2023 Around the Bay ambassadors!
Donate to Maddie Riewoldt's Vision
If fundraising is not for you, you can still support patients with Bone Marrow Failure Syndromes and their families by making a donation. Your donation will help Maddie's Vision create a brighter future for patients and families. Thank you for your support!
Messages of Hope
Thank you to the incredible riders, teams and supporters for leaving messages of hope to the patients and families living with Bone Marrow Failure Syndromes!
To all who are affected by Bone Marrow Failure Syndromes, I and many others stand behind you in support! We hope that our fundraising efforts can help with the incredible research that MRV is doing and that you receive the proper care and support in your time of need. Know that you are not alone in this fight!
Feeling inspired by the strength and optimism of you all, so much so that I'm doing something way outside my comfort zone. Let's hope I can achieve something worthy of you all and the great work at MRV. Time to #FightLikeMaddie!
Fundraising to support Maddie Riewoldt's Vision is going strong! Hope you are all doing well and are feeling optomistic :-)
Hope you all find some strength from everyone riding in around the bay we are doing it for you all 💪🏽🚴🏼
Your bravery and strength has motivated me to get out and train hard to be able to ride a distance of 100kms. I hope you also find strength in the support you have from so many of us who will be riding for you in the upcoming Around the Bay ride in October.
Amy Coote - CEO Maddie's Vision
We are incredibly grateful to Bicycle Network and United Energy Around the Bay for this wonderful new partnership. This is an amazing opportunity to help raise awareness of Bone Marrow Failure Syndromes and the important work of Maddie Riewoldt's Vision. Every single day we are fighting to create a brighter future for patients living with Bone Marrow Failure Syndromes and their families. This event and partnership is for them! Sending our love and thoughts to all patients and families on this journey across Australia.
Saving Lives with Genetic Testing
Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant. Recent advances in genomics testing are saving lives. Stories like Zak's highlight why Maddie's Vision is so focussed on funding medical research and clinical trials that will deliver answers to patients sooner.
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