You're helping create a brighter future for patients living with Bone Marrow Failure Syndromes and their families
Every 3 days an Australian is diagnosed with a Bone Marrow Failure Syndrome.
Distressingly, most are children and young adults, and 50% will not survive.
Your support will help fund research that will result in faster diagnosis, better treatments, tailored support and improved outcomes for patients and families impacted by Bone Marrow Failure Syndromes.
By fundraising for Maddie's Vision, you're helping the only organisation in Australia dedicated to supporting patients living with Bone Marrow Failure Syndromes and their families.
Support for patients and families
The Maddie’s Vision Telehealth Nurse Service is the only available service for Bone Marrow Failure Syndrome patients in Australia.
This service ensures that our patient and family's needs and well-being are understood, evaluated, and fulfilled. This holistic approach and expertise in Bone Marrow Failure Syndromes make our service unique.
Research that will change lives
Maddie Riewoldt’s Vision is committed to funding high-quality research projects with the potential to deliver breakthroughs in the prevention, diagnosis and treatment of Bone Marrow Failure Syndromes.
To date, we've funded 36 cutting-edge research projects, committed over $8 million to research, and secured $14 million in leveraged funding.
With your support, Maddie’s Vision will fund research which has the most potential to improve patient outcomes and change lives.
Need Bone Marrow Failure Syndrome Support?
Maddie’s Vision supports patients living with Bone Marrow Failure Syndromes and their families.
As Bone Marrow Failure Syndromes are rare, many patients and families feel overwhelmed, isolated and in need of support when they receive a diagnosis and throughout treatment.
Our Telehealth Nurse provides information and resources about Bone Marrow Failure Syndrome conditions, symptoms, tests, treatments and management.