Your support will change lives

United Energy Around the Bay is supporting Maddie’s Vision to fund vital research and increased support for patients and families living with Bone Marrow Failure Syndromes.

Every 3 days an Australian is diagnosed with a Bone Marrow Failure Syndrome. Distressingly, most are children and young adults, and 50% will not survive. Thousands more are living with complex medical issues and ongoing risks to their health. 

When our bone marrow fails, our body is unable to produce healthy blood cells, causing fundamental disruptions to our health. Sadly, treatments are inadequate and the only potential cure is a bone marrow transplantation which has serious risks. 

Patients diagnosed with Bone Marrow Failure Syndromes and their families find there are limited treatment and support options available. That’s why Maddie Riewoldt’s Vision is here.

By fundraising for Maddie’s Vision, you’re helping fund research that will result in faster diagnosis, better treatments, tailored support and improved outcomes for patients and families impacted by Bone Marrow Failure Syndromes.

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About Maddie’s Vision

Maddie Riewoldt was just 26 years old when she tragically died of a Bone Marrow Failure Syndrome called Aplastic Anaemia. When her fight was ending in February 2015, she asked her family to make her a promise; Maddie wanted nobody else to go through what she did.

Maddie Riewoldt’s Vision is her legacy.

At Maddie’s Vision, we are determined to increase support, find better treatments and ultimately a cure for patients living with Bone Marrow Failure Syndromes. Please join us and together, we will #FightLikeMaddie.

Ambassadors

Meet the Maddie's Vision 2025 Around the Bay ambassadors!

“It’s a privilege to once again partner with Bicycle Network for the 2025 United Energy Around the Bay. We are incredibly thankful for their continued dedication to supporting patients and families impacted by Bone Marrow Failure Syndromes. This ride isn’t just about the challenge - it’s about coming together to make real change for those who need it most. We’re honoured to partner with a community that rides with such purpose and passion through this iconic cycling event."

Nick Riewoldt

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Saving Lives with Genetic Testing

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant. Recent advances in genomics testing are saving lives. Stories like Zak's highlight why Maddie's Vision is so focussed on funding medical research and clinical trials that will deliver answers to patients sooner.