Patient and family stories

Thanks to our incredible patients and families for sharing their stories. This is who we're working for!

 When you support Maddie's Vision, you're helping power the incredible research that will unlock better treatments and cures for people living with Bone Marrow Failure Syndromes and ensuring they can access the support they need.

Carter and Skye's story

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

Saving lives with genetic testing

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant. Recent advances in genomics testing are saving lives. Stories like Zak's highlight why Maddie's Vision is so focussed on funding medical research and clinical trials that will deliver answers to patients sooner.

Matty's story with Fanconi Anaemia

Meet Matt and his grandmother Cheryll, who he affectionately calls Honey. Cheryll talks about Matty's journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.

Support Maddie's Vision

Support patients and families living with Bone Marrow Failure Syndromes by donating to Maddie Riewoldt's Vision. Together, we can Fight Like Maddie.

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